To mark the 50th anniversary of the Pediatric Research Foundation, Jean Caillé has set himself a major challenge: to raise $100,000 for children’s health.
Jean Caillé
“Dravet syndrome entered my life through what is most precious to me: my grandson Arnaud. As a grandfather, I am deeply moved by what he is going through. Above all, his experience has made me realize the reality faced by all the families living with this rare, complex, and still all too difficult-to-treat disease.
That is why I have chosen to support the work of Dr. Kenneth Myers at the McGill University Health Center. His team is working to develop new biomarkers that will provide a better way to assess the condition of children with Dravet syndrome and, ultimately, facilitate the development of new treatments. Arnaud is the very personal reason that motivated me to take action. “But this campaign isn’t just about one child. I want to help advance research for everyone living with Dravet syndrome today—and for those who will be diagnosed tomorrow. My goal: to raise $100,000 to help Dr. Myers and his team advance this vital research.”
— Jean Caillé
The project supported by Mr. Caillé:
Dravet syndrome is a form of genetic epilepsy that is often devastating and may be accompanied by seizures, cognitive impairments, sleep disturbances, problematic eating behaviors, difficulty walking, and a significantly increased risk of sudden unexpected death. This study aims to develop new biomarkers for patients with Dravet syndrome, using state-of-the-art techniques to noninvasively record brain electrical activity via electrodes placed on the scalp.
For 50 years, the Pediatric Research Foundation has been supporting research where it all begins.
Today, it invites leaders and major donors to mark this anniversary with a meaningful, lasting, and transformative commitment.Your donation is a gesture of trust.
Your commitment is an act of vision.
Your impact begins now.